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S 09 Lunch Symposium
Programme of the Session
Title: Patient & carer advisory groups – setting them up and running them.
Patient & carer groups – an interactive workshop on engagement in improving care quality
GS: Fiona Loud (UK)
GS: Helen Noble (UK)
GS: Nicola Thomas (UK)
Abstract
GUEST SPEAKER
Patient & carer groups – an interactive workshop on engagement in improving care quality
F.Loud1, H. Noble2, N. Thomas3
1British Kidney Patient Association, Alton, United Kingdom; 2School of Nursing and Midwifery, Queen's University Belfast, Belfast, United Kingdom; 3School of Health and Social Care, London South Bank University, London, United Kingdom
Background
Groups of patients can and do make a valuable contribution to healthcare systems, whether in advising, representing how the healthcare system is working from the viewpoint of the recipient, or acting as a voice for service improvement.
Objectives
The workshop will use practical examples of creating, recruiting and maintaining patient advisory groups and will explore the learnings from this approach.
Methods
Case studies
How a patient charity set up and learned from a patient advisory group
How the UK Renal Registry set up its patient council and what it has learned to date
Results
The workshop will discuss how the charity, the Renal Registry and the patient advisors benefited from their involvement.